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Nina, Diffuse Large B-Cell Lymphoma Survivor. Lymphoma can affect all those areas as well as other organs throughout the body.Many types of lymphoma exist. Diane experienced Fox Chase care first hand when she was diagnosed with Hodgkin's lymphoma … Stunned to be diagnosed with Hodgkin’s lymphoma in her early 30s, Stacy hurried to start chemo, and found it a lot easier than she had anticipated. Here we will discuss NHL in adults… I had developed a strange cough but explained it away as allergies. When I visited Dr. Sheppard recently, I told him, “I want to give hope to people with my type of cancer.” When I was diagnosed, I found a lot of discouraging statistics, so I started looking for success stories instead. Visit Brianna’s Video Blog “Cancerland” on YouTube. Eight months later, I was still telling myself it was nothing — ignoring how tired I felt and the weight I was losing. They encouraged me and gave me hope that I would get through it. Being alive is a bizarrely fascinating thing. I was meant to beat cancer.”, "You have to be your own best patient advocate. It really reaffirmed for me how important that process was for coping with trauma. I had never felt … (function() { "Ask for and graciously accept help along the way. Four-time lymphoma survivor Scott Baker has spent 2 years out of work and more than 100 days in the hospital, so he’s had a lot of time to think. The survey results above are a more reliable way to see what others with indolent lymphoma … Lymphoma Stories Lisa’s Fight Like a Girl Story (Myasthenia Gravis, Lupus, Cancer) August 28, 2015 Lupus Stories, Lymphoma Stories, Myasthenia Gravis Stories, Thyroid Cancer Stories 4. The OHSU infusion staff were totally dedicated — most of them had worked with cancer patients for years. CLL is the most common leukemia in adults. I was diagnosed with follicular lymphoma in 2011. Lymphoma Patient Stories Hodgkin’s lymphoma. gcse.async = true; My doctor and the nurse practitioner, Lisa Radcliff, were so encouraging and explained everything to me: Over the next six months, I was going to have 12 treatments of chemotherapy and then three weeks of radiation. Read and listen to personal stories from people who have been affected by lymphoma and learn how they have coped with diagnosis, treatment, caring for a loved one and living with and beyond lymphoma. … After a CT scan, my doctor referred me to the OHSU Knight Cancer Institute clinic in Gresham, just minutes from my house. … My name is Lisa Douthit. ", "The day I rang the bell after receiving a clean bill of health made me feel like a butterfly that had finally broken out of her cocoon to take flight. Just 10 months after my surgery, I rode a 20-mile time trial. ... I’d been in treatment for about a month and a half before I got the call from the OHSU Adolescent and Young Adult … It was, however, not an easy transition moving back into my parents’ house in Tigard after spending my early twenties living on my own in LA. Dr. Sheppard and his team spent 10 hours removing my tumor and making sure there was no other cancer. (HealthDay)—The Burkitt lymphoma (BL) International Prognostic Index (BL-IPI) provides robust discrimination of survival and can be used for prognostication, according to a … What is leukemia? And not a small one. L's Story - Her doctors doubted her reported symptoms & missed the diagnosis of lymphoma "The mailman was right, the doctors were wrong. Brianna Barrett's story. I have learned not to sweat the small stuff, to embrace the wonder of life to its fullest. From the kind, talented staff in convenient locations to the financial support we received, we were given the best of everything. You have to be the one doing everything you can to make sure you are getting the absolute best treatment possible. He said, “You know the good thing about roller coasters? Learn about eligibility and appointments for COVID-19 vaccines. Fever and chills. Like a lot of people my age, I wasn’t particularly diligent about taking care of my health. I turned my camera on the instant I heard his voice on the other end of the phone and recorded myself receiving this news for the first time. I had a tumor on my pancreas called a non-Hodgkin’s lymphoma. © 2001-2020 Oregon Health & Science University. My husband had recently lost his job, and we had no health insurance, which made me reluctant to see a doctor. I was not totally crazy, I had cancer." var cx = '005478907086173191714:lvjpzd2hjti'; Indolent Treatment Survey results: Follicular | Marginal Zone. The incredible support of my family and the social workers at the Knight Cancer Institute helped me stay strong and positive. How to tell him it was much, much worse than we thought. Lymphoma may look differently in children than it does in adults. In fact, every five minutes someone is diagnosed with lymphoma. I went from thinking I had a food allergy to learning I had a tumor. After four treatments, I had a PET scan that showed the tumor was shrinking. s.parentNode.insertBefore(gcse, s); Night sweats. Lymphoma is cancer of the lymphocytes, which are white blood cells that primarily exist in the body's lymphatic system, but are also present in blood and other body tissues. Some typical symptoms of lymphoma in adults … You can also submit your own story … Recognizing them early … The doctor told me that with most the cases that’s true. To submit your own story of hope, click here. Common warning signs of Hodgkin disease and non-Hodgkin lymphoma include swollen lymph nodes, fever, night sweats, weight loss, and fatigue. Through my involvement with LRF as a Diplomat and through their wonderful platforms, I can share my story and help other young adults who are going through exactly what I went through. This time, however, the two were determined to hold each other’s hands. Prior to my cancer diagnosis, I never realized how resilient or strong I was.”, “I never had any doubt that I would not overcome this disease and fight it through to the end.”, "This experience has taught me that you never know how strong you are until being strong is the only choice you have. ", “When I was diagnosed, I made a promise to myself that I wouldn't let cancer control my happiness - a promise which ended up being one of the best things I could've ever done.”, “There was a lot of good that came from having lymphoma. Non-Hodgkin lymphoma (sometimes called NHL, or just lymphoma) is a cancer that starts in cells called lymphocytes, which are part of the body’s immune system. They end.” He said my cancer had a good chance of being cured. Lymphoma For Montgomery County Controller Diane Morgan, becoming a financial donor to Fox Chase Cancer Center was about much more than just writing a check. Adult non-Hodgkin's lymphoma (NHL), a cancer that starts in the white blood cells known as lymphocytes is different than lymphoma in children and from Hodgkin's lymphoma in adults. ", "I am grateful for the opportunity to help others and be a part of LRF. Storytelling is a great tool that gives us the ability to forage for the little nuggets of beauty or intrigue or humor in those situations in life where it’s not always apparent. Coming to the OHSU Knight Cancer Institute. When I was diagnosed, I think it was a no-brainer that I would go to the OHSU Knight Cancer Institute. I already knew, whatever was wrong with me, I was going to make it better by turning it into a story. var gcse = document.createElement('script'); When lymphoma starts in the thymus or lymph nodes in the chest, it may press on the nearby trachea (windpipe), which can cause coughing, trouble breathing, or a feeling of … NHL is the seventh most common cancer in US adults. By the time I got to the doctor’s office that afternoon, my chest hurt so much I needed assistance just to lie down. My doctor sent me to Dr. Brett Sheppard at OHSU Knight Cancer Institute, a surgeon who is an expert at treating pancreatic cancer. Some people are the gift. Fighting lymphoma is a long and difficult journey with many ups and downs. Stories of Hope is LRF’s ongoing effort to give those affected by lymphoma a voice. I feel like I have been battling disease my whole adult … I will always remember coming up the stairs to see my husband, wondering what to say to him. I started regularly getting one-on-one counseling, and I joined a great group of fellow patients and survivors at the AYA writing group. I was driving to work when my family doctor called. Armed with a consumer-level DSLR, my iPod camera, and “too many tumor sites to do radiation on,” I started filming the ins and outs of my everyday experiences as a young person with cancer. Eventually, I was able to ignore the pain in favor of getting to spend hours poring over footage and editing my story together. Hi! After surgery, I had chemotherapy every two weeks. The relief of being offered free counseling services and a support group was tremendous. I wouldn’t say making a video journal about my cancer helped me “just focus on the good” — I was focusing on the bad, too — but what’s important is I was focusing on why it was interesting and why it should matter to me. My cancer has been in remission for three years now. I was 24 when I learned I was going to have to drop everything and start making a documentary about what it was like to have cancer. I’m an avid cyclist, and I said, “Whatever you do, I’ve got to get back on the bike.”. On December 15, 2010, it was determined that I did, in fact, have non-Hodgkin follicular lymphoma. Today, I have my own success story to share. Chronic lymphocytic leukemia (CLL) is a form of cancer that affects the blood — specifically a type of white blood cells called lymphocytes — and bone marrow. Andrea Lehman connected me with the local chapter of the Leukemia & Lymphoma Society, where I was able to apply for and receive a stipend for extra expenses during my treatment. Hodgkin's lymphoma (formerly called Hodgkin's disease) 2. A few days after that, my doctor called to tell me the results: I had Hodgkin’s lymphoma. ", Research Initiatives & Scientific Programs, Jeff, Diffuse Large B-Cell Lymphoma Survivor, Nina, Diffuse Large B-Cell Lymphoma Survivor, Kristin, Diffuse Large B-Cell Lymphoma Survivor, Hollie, Hodgkin and Follicular Lymphoma Survivor, Donna, Diffuse Large B-cell Lymphoma Survivor, Barry, Chronic Lymphocytic Leukemia Survivor, Chris, Peripheral T-Cell Lymphoma Caregiver. Stacy Heldmar says. I told him I felt like I was on a roller coaster. So, I figured it was probably time to get that checked out. As a part of September’s National Hodgkin’s Lymphoma Awareness Month, we are sharing the story of Asia Cutforth, an education intern at the Cancer Support Community. The pain that was keeping me awake at night turned out to be a rare type of cancer. I pursued my treatment like I imagined a journalist would pursue a hard-hitting undercover exposé, and that helped me maintain my stamina — not the kind of stamina that always gets you out of bed before noon, mind you, but the kind of stamina that gets you through spending an entire day just trying to eat the same one cup of yogurt. Non-… My family and I are so grateful to the Knight Cancer Institute for the wonderful care and support they gave us. Learning I had cancer was a surreal out-of-body experience. I can’t imagine how my family and I would have handled the finances on our own. It’s a fantastic resource to have so close to my hometown of Tigard. In December 2012, however, I was back home with my family in Oregon and finally got around to seeing a doctor about some neck and chest pain I’d been experiencing. Symptoms may vary depending on where the lymphoma is in the body. Some people give gifts. Radcliff told me to hang in there: “We want to make sure we get rid of this the first time,” she said. Stacy just couldn’t shake her … ... We continued to volunteer our time as adult … People often say that art imitates life. Once he said that, I kind of knew that I had lymphoma. Home > Cancer Stories > Non-Hodgkin Lymphoma. I saw a lot of people in that writing group who benefited from being able to translate their experiences into stories that could be shared with others, like I was doing with my videos. gcse.src = 'https://cse.google.com/cse.js?cx=' + cx; var s = document.getElementsByTagName('script')[0]; The Lymphoma Research Foundation’s mission is to eradicate lymphoma and serve those impacted by this blood cancer. Read in-depth non-Hodgkin’s lymphoma stories from our patients and … Linda, Hodgkin Lymphoma Survivor. OHSU is an equal opportunity affirmative action institution. Jeff, Diffuse Large B-Cell Lymphoma Survivor. It looked like something huge was clogging my lungs. I’d been in treatment for about a month and a half before I got the call from the OHSU Adolescent and Young Adult Oncology Program support group, inviting me to come to a meeting, and it was perfect timing. Oregon Health & Science University is dedicated to improving the health and quality of life for all Oregonians through excellence, innovation and leadership in health care, education and research. The advice I would give anyone with cancer is this: Find a creative outlet. At the time of this diagnosis, I was studying to be a nurse practitioner and our class was learning to examine the lymph nodes. Some of the most common first symptoms of Hodgkin’s lymphoma can include: Swelling of the lymph nodes (painless), often in the neck, armpits, or groin area. Share Your Story of Hope. When you’re 23, you don’t think of cancer as a possibility. Radiant Racheli is a cancer survivor spreading smiles all over the internet by creating video blogs and columns about how to fight adversity with positivity while also raising awareness for young adults with cancer. Stay informed with news, alerts and other resources. PATIENT STORIES Providing hope, inspiration and sometimes invaluable lessons. There are many many success stories with Hodgkin’s Lymphoma. After three weeks of radiation, another PET scan showed no new activity and an even smaller tumor. It wasn’t exactly the subject matter I’d always dreamed of tackling — but there it was. Leukemia Stories Symptoms, Diagnosis, Treatment. The main subtypes are: 1. I was always under the impression you could only have mono once in your life. When I ultimately got a chest X-ray, the mass was obvious. Lymphoma symptoms in women can be similar to symptoms of many other ailments. I know that I was meant to go through this, to live, embrace and survive. Home > Cancer Stories > Leukemia. … Toward the end of chemo, I started doing short rides, and joined a program that helped cancer patients recover their fitness. Within a week of my first chemotherapy treatment, my cough was gone. I was at the hospital again about a week later, on the day after Christmas, to get a biopsy. In my case, my story … The process was easy, and the help we got meant so much. gcse.type = 'text/javascript'; January 7, 2012 at 11:40 pm. Leukemia is a broad term for cancers of the blood cells, most often occurring in adults … I also applied for financial aid through OHSU. Non Hodgkin’s Lymphoma Stories Symptoms, Diagnosis, Treatment. And when I say I “finally got around to” it, I mean I woke up one morning and literally couldn’t move my neck. LRF Helpline: 800-500-9976 | HELPLINE@LYMPHOMA.ORG, Privacy Policy|Donor Privacy Policy|Gift Acceptance Policy, "Ask for and graciously accept help along the way. Make it meaningful. Reply. As people out in the world, we don’t always remember to view our lives that way — but we really should. Use the drop down filter to find the most relevant stories for you. For many college … Fighting lymphoma is a long and difficult journey ... Marian, Hodgkin Lymphoma Survivor. This block is broken or missing. Education and Training for Students and Professionals, Adolescent and Young Adult Oncology Program, Social and Emotional Side Effects of Cancer, Knight Cancer Institute BioLibrary Research Portal, Knight Cancer Institute BioLibrary Public Portal, OHSU Adolescent and Young Adult Oncology Program support group. I have enjoyed being a part of the LRF’s Erase Lymphoma initiative, which is focused on adolescents and young adults. Alison shares her daughter’s story of fighting Non-Hodgkin Lymphoma, and offers advice to parents supporting their own child through cancer. Racheli was diagnosed with lymphoma … We did a full biopsy of a lymph node under my neck. Dr. Sheppard and my OHSU cancer team got me back on the bike and gave me my life back. By simply sharing your story, you can impact countless lives. People also say life imitates art. My dad worked at Nike for almost my entire life, so Phil Knight is someone I heard about ever since I tagged along to Take Your Daughter to Work Day as a little girl. There are many different kinds of lymphoma, and many different symptoms are possible, as a result. He’s thought about how he … })(); Everyone’s lymphoma story is unique and special. I had been living in Los Angeles for the past three years, pursuing a career as a writer for television. Each year, nearly 70,000 adolescents and young adults (AYA) are diagnosed with cancer; and lymphoma, the most common type of blood cancer, accounts for nearly 1-in-5 cancer diagnoses among young people. You have the power to take any moment of your life — no matter how terrible — and decide what it’s going to mean to you. At my first appointment, where my doctor ordered a biopsy, he put his hand on my shoulder and asked me how I was doing. You may be missing content or you might need to enable the original module. ", “I have felt very fortunate to have these fine doctors to help me navigate my CLL/SLL journey and feel very positive on where my CLL journey will take me next.”, “Although I question my strength at times, I know that in the end everything will be okay. The most common symptoms include fatigue, fever, swollen lymph nodes, abnormal … Lymphoma is a cancer of the lymphatic system, which is part of the body's germ-fighting network.The lymphatic system includes the lymph nodes (lymph glands), spleen, thymus gland and bone marrow. To read other stories of hope, please click on the links on the right hand side of the page. Don ’ t particularly diligent about taking care of my first chemotherapy Treatment, my doctor sent to. 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